I have recently been diagnosed with fibromyagia and at first it was kicking by butt. Everyday is a new but repetitive struggle. Just getting up out of bed is unnecessarily painful and exhausting. I have five children that need me to push through my pains and stiffness for. With their ages ranging between 2 and 14 they still need me to do an awful lot for them, which i'm so grateful for as it gives me a purpose everyday. I show them to fight and push through what's trying to prevent me from being a great parent.
Now my children are very good and extremely understanding because they know when i'm in pain I have a stroppy moody tone but they don't listen to my tone as they have said we can see in your face that you're in pain. I wouldn't be able to get out of bed in the morning if I didn't have them, yet I also rely on them to give me a helping hand with some things I struggle with now days.
I have had this most of my life but my Mother always told me it was in my head and I was being a drama queen. The truth was I was always tired and in so much pain that it made me cry, when I cried i'd get a smack and told off which added to my hurt. So for 20+ years I have muddled on with my pains, cracks, IBS, headaches and over 200 other symptoms to finally be given a leaflet about fibromyagia and for the first time in my life actually felt like I fitted somewhere.
I had to change surgeries three times because I felt the surgeries care had gone down hill, to finally be with a surgery that have been fantastic and caring enough for my children and I.
I had an accident in June 2016 that I still haven't recovered from, not there was any damage but my god did I hurt. I struggled to get out of bed most days it was horrible. I'm on two loads of prescribed medicine which doesn't take the pain away but does help me have a semi normal day. I use a mobility scooter outside the house i'm only 32 this year! but that saves so much energy so I prefer that to my self propelled wheelchair which I found exhausting. I have to use crutches in my home because I like meeting the floor and that hurts. I'm wobbly on my feet.
It's not an easy condition and it knocks you off your feet but you have to fight however tired you feel because otherwise your never feel any better. I still haven't felt well in so long. But I don't want my children to give up with any of their hurdles in life so I can't give up with this in mine. Just getting out of bed means I am kicking butt at having fibromyagia.
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